Great news!! Teydon didn't have any grand mals last night!!! Wahoo! Happy dance!! He did have 4-6 tonic seizures, arms and legs would go stiff but they only lasted 10 seconds! Thank you, thank you for all of your prayers! They are being answered!! We are hoping it continues but still taking it one day at a time. We are very grateful for the good days we get! We have also been able to see more of our Teydon's personality again! We've missed it so much! Teydon also is not having any day time seizures, he doesn't have to wear his helmet anymore atleast when we know he's having a good day. We continue to hope and pray things continue to go good.
Another challenge that we've over come is taking meds, his new meds are in pill form and taking 5 now. At first we were opening them up and dumping the medication on a spoonful of yogurt which worked when we only had one pill, once it increased it was hard to get him to take it, we tried mixing it a couple different ways but it was a constant fight, especially when he was on lorazepam it was horrible! We had to pretty much force all of his meds down, poor guy hope he doesn't remember very much of that! But now we have him swallowing all 5 pills like a big boy! It took me forever to be able to swallow pills, my mom jokes Teydon is doing it 10 years earlier than his mom. I'm very glad he didn't get that trait of mine or life would be pretty miserable for him. We are very proud of him! It's so cute, he will smile once he finally gets it swallowed, thinks he's pretty cool that he can swallow pills! He tells Boden all about it! I think it's pretty cool he can do it too!
January was a really really really hard, challenging month. It was a bad nightmare that hopefully we never have to do again! But we held on through the storm, not by ourselves but with the help of so many people holding us up! I would not have been able to make it through this without my amazing husband, super mom, awesome dad and step mom, our amazing ward family and bishopric, family members, neighbors, and friends! We will never be able to repay you all for your service to us! My heart is very full of love and gratitude for everyone in our lives! I know it's not a lot but THANK YOU for everything! I owe all of my thanks to my Heavenly Father and my savior Jesus Christ, they have blessed me with strength, hope, happiness, and all of you! So grateful for my knowledge of them in my life!
No comments:
Post a Comment