Genetic Testing

The doctor called me this mourning with Teydon's genetic test results, they came back clear! Teydon does not have doose syndrome! She said we could go other testing but usually insurance doesn't pay for those. We don't feel that there is any other testing we need to do. We are grateful that the results came back clear. Gives us hope that he can still grow out of these seizures. At the same time it would've kinda been nice to have a reason for the seizures, nothing we can do about it.

Seizure update, excluding today, the last couple mornings seizures haven't started until 7:30ish in the morning and he only has 2-3 each morning. He would then sleep until 10:30 so we've been having some late mornings. This morning he was awake for the day at 7:30 so he didn't have any seizures last night! Wahoo! Now if I can just get him to sleep through the night without having bad dreams or getting cold we'll be good! We are thinking as long as he gets to bed early and sleeps fairly well we might start getting him up at 7:30 and hopefully skip seizures all together! It's hard to have a set schedule when his seizures keep changing all the time, we just go about our day one minute at a time lol.

I'm very grateful for the change we have seen in Teydon, so much better than he was, it was scary there for awhile. At the same time it's hard to get super excited about it cause he's done this before has been good for 1-2 weeks and then it's like his body builds up an immunity to the medications and they stop working and seizures start up again. It's a roller coaster ride that's not very fun.  We just take it one day at a time and hope for the best! Today is a good day!! Thank you all again for your prayers and thoughts towards us and Tough Teydon!