I knew I shouldn't havr bragged about Teydon not having any seizures, seems like it always back fires when we talk about how good he's doing. He's not having a lot but is still having 1-3, which is so much better than 17 and we've seen major improvements on getting his personality back so I am super grateful that things are better. Now if we can just get them to stop completely and not come back it'll be great. We are going to increase his zonisamide again and hopefully that will take care of these last few.
One of the seizures he had last night was weird, he was sitting up while convulsing, everytime I laid him back down he would try to sit back up. After it was over he was wide eyed and acting like he was wide awake but was staring off at the same time. If I wasn't used to grand mals it would've been kinda freaky, though it was still a little weird. Dan said he did that with him over the weekend. Not sure what's going on with those.
A happy note Teydon and Dan went skiing last night with ward ski night. Teydon did really good, it was rough at first he was being stubborn and wouldn't even try but with some coaxing and putting the tether thingy (I'm a boarder so don't now ski stuff lol) on the front of the skis, he was a pro. It was so good to see him be capable of doing it, a couple weeks ago it wasn't even a possibility. So grateful for little improvements!!
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