Saturday, February 13, 2016

Hate this roller coaster ride sometimes

It always comes back and bites me in the butt when I talk about how good Teydon is doing. We can never figure out these seizures, we think we have them under control and then they switch on us, either different types or having them at different times. He had 3 from 5:30-8:30, woke up with an upset stomach, threw up, and then had a seizure at 10 while awake, he took a 3 hr nap and then had another seizure at 3 also while he was awake. Just when it gets bearable and less stressful things change. Today is a bad day. Hard to hold on during hard days, especially when you get use to having good days. We were loving not having to worry about him during the day. Hopefully tomorrow will be a better day. We're nervous that his body is getting used to zonisamide and not working as well, like I was talking about in my last post. Days like today are so hard, is it tomorrow yet? I know you all are and I'm grateful for it but I ask if you will continue to pray for my little guy. Thank you!

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