Thursday, July 14, 2016

We're on a roller coaster ride and it's not a fun one

Teydon was doing REALLY GOOD! His drops and absence had decreased in number and severity and he had gone almost a week without ANY grand mals! Between last night and just now with taking a nap he has had 5 grand mals, all while asleep. I want to wake him up so he doesn't have anymore but he's so exhausted from all the grand mals. The poor kiddo needs sleep! We are having a hard time getting insurance to approve his new medication, we've been trying since Monday to get and still haven't got it! I'm really nervous that we are starting into another "January" and I'm really stressing out about it. We have no idea where this came from, we cant think of any triggers, we've been strict on the schedule and he was doing so good!! We're trying to be positive and remember the good days he has been having but to be honest it's hard! I feel like the good days just tease me and make me want them even more cause it shows me how life could be!! I can't wait until we he off of this roller coaster ride, it's not fun! Please add him to your prayers that this can just be a fluke deal and not an everyday thing again. Thank you everyone for all of your love, support, thoughts, and prayers! You all hold a special place in our hearts!

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