Schedule and meds

After receiving his diagnosis we tried upping depakote to see if that would help with his seizures, it didn't help and we felt like it was causing him to be in a zombie state so we are in the process of taking him off of it. We are going to add Banzel once his off of depakote or at least down a lot, depends on seizure activity. Banzel and depakote can have a reaction with each other so we have to get him off D first. It will take us 4 more weeks to be off depakote, it's such a long process getting on and getting off a drug! Banzel is used a lot with helping treat Lennox syndrome (LGS info) so we are being hopeful it will help him! That is nice thing with having a diagnosis his treatment can be directed better.

We have read that being on a sleep schedule can help with the seizures. W have been trying it out for a couple weeks now and have noticed that it helps. Last week was a busy week for us and if he was even a half hour to 45 mins off schedule he would have a grand mal that next morning and have rough days. Yesterday he took a nap, he hasn't had a nap in a week so thought it would be good for him to get one in see if it would help, he ended up taking too long of a nap and didn't wake up until 4. It through his schedule off and this morning he had 2 grand mals 2 hours apart. He had gone 3 days without a grand mal and had a really good day yesterday! His schedule is super important to stick too. It's hard, it makes us having to leave parties early and him missing out on something like fireworks but in the end it is worth it. To see him have a good day, being able to be alert, to play, smile, and seeing the brightness in his eyes makes it so worth it! We have also added a herbal, sleepy tea to help him settle down and fall asleep, it is helping him immensely! He would take him 30 mins to an hour to fall asleep once laying down, he would toss and turn and talk. With the sleepy tea he's usually asleep within 15 minutes! It's all just trial an error and figuring out what works for him and also us to stick to his schedule.

We ask that you will add to your prayers for him, that while switching meds around he can still have some seizure control and they not go out of control until we get Banzel started. Thank you for your love, prayers, and support for us and especially for Teydon! Everyone is so good with him it makes this Mommas heart full and happy, THANK YOU!!