Friday, July 15, 2016

Bad days vs blessed days

It's crazy how when you have a bad day it seems like everything goes wrong and is super stressful. On good days it seems like you get all the blessing and good days. Today was a better day. Emotions were better and Teydon is doing better! We heard him laugh more this afternoon than in a long time! It was a bust a gut, can't stop laugh! Absolutely LOVE his laugh and smile! It amazing what no grand mals does for him! Today's blessings were words of encouragement, money blessings, and the pharmacy called and told me that the bottle that his new med comes in is bigger and can't be separated into smaller bottles so we got a 3 months supply for $60! I could've used at least one good news yesterday, it would've helped me feel better. Though it is hard, I need to remember the blessings we have received, that we receive daily cause we are so very blessed. We will start the new med in the morning and he'll be done with depakote a week from Tuesday. We definitely know that depakote was the cause of a bunch of his problems, bad side effects from it. This new med Banzel is used for Lennox Syndrome so we're being hopeful! Thank you for your prayers, they were answered! So grateful for my Heavenly Father and the love he has for me and the blessings that he gives me despite my "bad days"!

Thursday, July 14, 2016

We're on a roller coaster ride and it's not a fun one

Teydon was doing REALLY GOOD! His drops and absence had decreased in number and severity and he had gone almost a week without ANY grand mals! Between last night and just now with taking a nap he has had 5 grand mals, all while asleep. I want to wake him up so he doesn't have anymore but he's so exhausted from all the grand mals. The poor kiddo needs sleep! We are having a hard time getting insurance to approve his new medication, we've been trying since Monday to get and still haven't got it! I'm really nervous that we are starting into another "January" and I'm really stressing out about it. We have no idea where this came from, we cant think of any triggers, we've been strict on the schedule and he was doing so good!! We're trying to be positive and remember the good days he has been having but to be honest it's hard! I feel like the good days just tease me and make me want them even more cause it shows me how life could be!! I can't wait until we he off of this roller coaster ride, it's not fun! Please add him to your prayers that this can just be a fluke deal and not an everyday thing again. Thank you everyone for all of your love, support, thoughts, and prayers! You all hold a special place in our hearts!