No changes yet, not for the better anyways. He's not having as many seizures during the night but still 7-10, better than 17. He also has seizures when he's napping too, the poor guy can't get any sleep. Right now we are dealing with side effects from the lorazepam, he is very tired but won't sleep, groggy, irritable, emotional, just really having a couple of rough days. We have one more day of the lorazepam so hoping emotions change a little once he comes off of that. The days (and nights !) are rough., he so bad wants to play and do things on his own but can't and that frustrates him and you can tell that he hurts and just does not feel good. Most our days are spent on the couch.
He will be up to his dose of zonisamide tomorrow night, the doctor said it could take up to a week to see results. We can continue to increase if this dose doesn't control them.
We hope that we can get our Teydon back sometime soon we are all missing him, including his little brother. We hate seeing him suffer like this.
We are so grateful for the love and compassion so many have shown to us! Thank you!
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