Here it is almost a month since my last update, crazy how fast time goes by! Not doing so good with more regular updates but at the same time not a lot has changed.
He is still having 6-10 drops a day and poor kiddo keeps getting injured. What doesn't kill you makes you stronger right :)! Yesterday he hit his nose on his knee causing it to bleed like crazy and then at dinner smacked his head on the table. He's such a tough little guy! Unfortunately I'm getting a little immune to the drops, meaning they don't seem to be as stressful to deal with. I know it's because of so many prayers, begging for the strength and patient to deal with them! Heavenly Father answers prayers and is mindful of our needs! For whatever reason this trial is not supposed to pass us yet so all we can do is embrace it, continue to move forward and find the joy in each day!
We have Teydon up to the dosing of the new med that the dr. wanted him to get to since Friday we hope to be seeing some results from that within the next week or so. If not we will probably increase it some more. We will be taking Teydon in sometime this week to get blood drawn and test his levels. Wish us luck!! I'm afraid this time won't go as well where now he knows what is going to happen. Gonna have to do some major bribing! Please pray that his levels will be ok and that the depakote isn't causing any damage. Thank you!
School update. We talked with a friend last night about Teydon's situation. She knows the principle at birch creek and she gave him a call today to kinda help explain Teydon's situation better. Be our advocate that we're not making this up lol. The principal called Dan today and talked to him about Teydon and some options. The principle is setting up a meeting sometime this month with him, teacher(s), the school nurse, and us to put together a plan for Teydon's schooling and needs. It is such a relief to finally be heard and getting some good direction! We are going to do some kindergarten assessments and see where Teydon is at academically for either kindergarten or 1st grade. We fel a lot better about things after having talked to our friend and to hear from the principle. So grateful for all the prayers and all the help we continue to receive from so many people. We are truly blessed!
